Her Royal Highness Princess Letizia of Asturias presided over the “World Day of Rare Diseases” held at the headquarters of the General Council of the Judiciary in Madrid, Spain on March 1, 2012.
The Princess was accompanied by the Chairman of the Supreme Court and the Council General of the Poder Judicial (CGPJ), Mr. Carlos Dívar, the Minister of Health, Social Services and Equality, Mr. Ana Mato, and the President of the Spanish Federation for Rare Diseases (ERDF), Ms. Isabel Calvo.
During today’s event Princess Letizia gave a speech in which she stated:
…I’ll repeat what I said three years ago, that no person with a rare disease nor those who surround and supports them sits alone, isolated, uninformed, helpless and without opportunities. If we work together for them and work more, we can maintain hope.
The Spanish Federation for Rare Diseases (ERDF), in collaboration with the European Organization for Rare Diseases (EURORDIS), organized the campaign of raising awareness in Spain to claim the right to life and to support people living with rare diseases.
Click the links below to watch a video as well as to view photos.
Source and photo courtesy of Casa de Su Majestad el Rey